Comment: A few years back, we say a documentary, The Boy Whose Skin Fell Off. It was dramatic and memorable. The woman presented here, at age 36, is lucky that she has not had invasive squamous cell carcinoma yet. Her life must have been one long story of pain. While we know a bit about her physical disease, we know nothing about her family or how she has managed to cope. We suspect that her story may shed some light on her quality of life.
Film: Here is a link to a You-Tube of The Boy Whose Skin Fell Off. (2004, 49 minutes)