tag:blogger.com,1999:blog-9870114.post3822634185212512355..comments2024-03-10T08:41:32.400+00:00Comments on VIRTUAL GRAND ROUNDS IN DERMATOLOGY 2.0: TrichoepitheliomaHumane Medicine Huihttp://www.blogger.com/profile/07113291188306363130noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-9870114.post-73843910768571613312012-08-15T23:11:50.841+00:002012-08-15T23:11:50.841+00:00I too have multiple trichoepithelioma since I was ...I too have multiple trichoepithelioma since I was eight years old...now in my 40s. I wish I had the answers for a complete cure. I had laser surgery done. It was pretty sucessful, however, I have some scarring from it. I have been searching and searching for anything that would be the answer. I recently have inquired about stem cell treatments. VERY EXPENSIVE. And of course insurance won't pay for it. To date (that I can find)there has not been anyone with multiple trichoepithelioma who has had it done to see if it works or not. And trying to get any research hospital, lab, school, or other research insitutes to even think about looking into it also takes $$ and lots of it. If I EVER find anything out I will share with you all...my friends...as we are in this together. If anyone would like to share the names of their doctors that would be helpful!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-52656850748349820492012-06-13T02:45:24.823+00:002012-06-13T02:45:24.823+00:00I was told it was possible to be pre cancerous but...I was told it was possible to be pre cancerous but highly unlikely. I had a plastic surgeon remove a lot of it and have not had any problems. Go for it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-30087181954033530502012-06-13T02:44:12.144+00:002012-06-13T02:44:12.144+00:00I am 31 years old and have had it beginning about ...I am 31 years old and have had it beginning about 14 years old and progressively getting worse by age especially in my early 20's. I located a plastic surgeon who identified it and about 6-7 outpatient procedures later I have had a good amount of the problem areas removed. A couple of more problem areas have developed, that are just the nodules which have increased in size a little bit over time, that I think I will have to go get removed like last time. I had my lesions excised not shaved. I haven't seen a real resurgence and would recommend the surgery. Its not too painful except when you actually get the shots to numb the area before its cut out. I use and would recommend using skin care products like mud masks, daily face wash, and some type of face scrub, it seems to help the look of the skin.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-8202174246527836802012-04-06T17:37:44.444+00:002012-04-06T17:37:44.444+00:00I have had trichopithiloma for the last 22 years. ...I have had trichopithiloma for the last 22 years. A year ago I had a biopsy & was diagnosed. Mine is not hereditary. No dermatologist wanted to mess with it. I finally have one that is shaving them off I'm on my 3rd shave because they are all over my face & ears but since I've been having them shaved I have acquired really bad headaches & allergy/sinus problems. Does anyone know if that causes all these problems? If you know anything or can suggest something please email me mousie_19@yahoo.com thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-67159801402414731812012-03-03T07:10:58.060+00:002012-03-03T07:10:58.060+00:00I have it, too. I have it since I was 2 years old ...I have it, too. I have it since I was 2 years old and now I'm 25 ...I really wanted to go to the dermatologist coz it's spreading all over my face.We also have dermatologist here.But I'm afraid that if the dermatologist will fail to treat it...it will lead to cancer..Can it lead to cancer?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-47358038774490908472012-02-16T01:22:40.034+00:002012-02-16T01:22:40.034+00:00To Anonymous from Jamaica. I can help you find a ...To Anonymous from Jamaica. I can help you find a dermatologist who can treat your trichoepithelimas -- but will need your email address so I can let you know. DJ Elpern VGRD organizer.Humane Medicine Huihttps://www.blogger.com/profile/07113291188306363130noreply@blogger.comtag:blogger.com,1999:blog-9870114.post-1646836997358043632012-02-15T18:23:11.342+00:002012-02-15T18:23:11.342+00:00I am 20 yrs old and have trichoepithelioma. They a...I am 20 yrs old and have trichoepithelioma. They are mostly around the nose and forehead. My parents and I have been trying for year to find a treatment in our country Jamaica but was unsuccessful. Please assist me with the best place I can visit to treat it so I can live a normal life.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-56601896049621622542009-06-25T15:00:03.095+00:002009-06-25T15:00:03.095+00:00The history is important in that the lesion is enl...The history is important in that the lesion is enlarging. Remember, a biopsy is a sampling of tissue. Another biopsy 2 mm away from the present biopsy site might reveal BCC. I have seen this situation in two cases. Microscopic patterns of neoplasms do not always correlate with the biologic action of the neoplasms. <br /><br />Even if all biopsies reveal only trichoepithelioma, what does the clinician do? Radiation therapy is a possibility but there is little information about long-term results (more than 5 years post-op). Many would consider Mohs surgery to be overkill, but if the lesion continues to enlarge, it is biologically aggressive and needs to be extirpated. With modern plastic surgical techniques, reconstructive surgical results after Mohs are often quite good.Michael Albom, M.D.noreply@blogger.comtag:blogger.com,1999:blog-9870114.post-48296222188432611532009-06-04T15:17:51.150+00:002009-06-04T15:17:51.150+00:00Shave excision and/or controlled cryotherapy appea...Shave excision and/or controlled cryotherapy appear to be safe practical options.Ashok Kumar Sharmanoreply@blogger.comtag:blogger.com,1999:blog-9870114.post-28817685179285752722009-06-03T19:12:05.792+00:002009-06-03T19:12:05.792+00:00Thanks alote:Interesting case.Shave and simple cau...Thanks alote:Interesting case.Shave and simple cautry<br />khalifa sharquieAnonymousnoreply@blogger.com